Sept 25th
Fuck Cancer!
What that is what my shirt says, I did not make it say that :).
Well anyway here we are. Today we get the results, find out if and when we start chemo. Finding out where exactly the lymphoma is and how big and if it is hiding anywhere else.
So first off he wants to know if we want to see the PET scan? uhm..........geeze YES!!! Besides Ed's "what does excessive mean?" this really was a no brainer, Mr. DR.
The PET scan shows that there is Lymphoma in all my marrow all the way up from my legs to my head. The "hot" spots (and I don't mean sexy) are really clear. If they were lights I would be glowing! The good thing and yes I consider it a good thing is that there is no signs of it in any of my other organs, and the spot that he thought may have been my lymph-node with it, is now clearly to him a spot on my spine. The fact that marrow goes through my entire body is a fact totally wasted on me right now at this moment. I have none in any other parts. I am relieved. I have a reason to hurt, after two years I can say MY BONES HURT and they really do and there is a reason.
Wrap up I am still odd, excitedly the Dr. has informed me "you just don't see Lymphoma act like this". For some reason mine is attracted to the bone and bone marrow. He is taking my case to the tumor board AGAIN. Not sure if I have mentioned this before but I have a board of 21 Dr.'s looking into my case and giving their input, because I am an odd ball. But also because of this oddness I am out for any trial medical treatment.
So what about Chemo, I looked up all the ones he had suggested, convinced myself it would be R-chop, because my rule is plan for the worst be excited when it is less!!! And it is he says he is leaning towards B & R. I won't bore you with the details, but that is only 2 medicines with a side of kidney protector. He does mention that could change as he is expecting a very vocal meeting of the tumor board about how to treat me. I am ok with it, let them battle it out. I don't think I have anything to lose.
He asks to see my veins for Chemo, and I ask about a port for the Chemo he never looks at my veins. I think I have just made him decide on the port. I am ok with that as I was not looking forward to being stuck every Chemo day and an I.V. put in. With a port it is always connected and ready. Wine, Beer, Margaritas.........ok maybe not. But that would be cool.
So he will call if anything changes and his office will call with the port installation. My chair reservation for my first Chemo is set for Oct 10th. Was hoping for the 8th. That is the day me and Ed started dating 27 years ago and that worked out well.
Then I thought it would be the 11th because I read my phone calendar wrong, that would have been cool too both my kids were born on an 11day.
I got the 10th.
Well I will take it, it is right in between.
Ready for a fight, let's go!!
~Lady Antebellum~
"One Day You Will"
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